SNUC_in_NY

My late wife's journey with SinoNasal Undifferentiated Carcinoma (SNUC), and my subsequent journey as a grieving widower finding my way back to life.

Friday, August 18, 2006

Would you like to buy some property in Florida?

We had felt really well informed about the type of cancer, its characteristics, the treatments, and where we needed to go to get the best treatment. Now that we're in the treatment phase I feel pretty poorly informed (I guess Robin feels the same way). It seems that chemo and radiation are somewhat customized so you can't just talk to someone else with a different type of cancer and expect to have the same experience. The other person likely had different drugs administered in different ways with different side effects. Furthermore the nurses say that even two people with the identical disease will not have the same experience! So basically there is no way to forecast what Robin is going to go through over the next three to four months, though we understand the range of possibilities.

Just 48 hours ago I was thinking that we'll go home this Saturday after the four days of chemo and next week things will be back to normal. I'll go to work and Robin would be home tending to the garden until September 5th when course #2 starts. Each day we proceed and each new piece of information we learn seems to indicate that it won't be so easy. I wondered why people talk about having a support network throughout this type of experience. This afternoon, after watching her lie in bed for six hours not moving, I understand completely why this is a job for more than one person!

Overall, I'm starting to get this feeling like we've bought property in Florida sight unseen - only to find upon our arrival that the house is not what we were expecting. The inside doesn't match the photos in the sales brochure, the view is of a pond and not the ocean, and everything in the house doesn't seem to work quite right.

We signed up to do everything possible to ensure Robin the best possible outcome, so whatever comes our way (in terms of side effects, etc.) we'll accept and we will just keep moving forward!

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