Activating the troops!

Last Wednesday Robin’s friend Connie (an R.N.) came along for the ride to Beth Israel. It was quite a relief to have someone who could take care of Robin during the car ride to the city. In addition, it was a relief that she also took excellent notes at the meeting. When meeting with doctors Robin is obviously the center of attention. A friend at work is also married to nurse who is a cancer survivor. He forewarned me that the nursing/clinical side of Robin’s brain was likely to shutdown during the meetings with doctors since she is now the patient. Having Connie along helped us document the meetings, gather the technical details and talk about them!

Today my brother Jonathan is driving in from Massachusetts. He’s going to travel with us this week to New York. Robin has a cousin Peter in New York and he has graciously offered to let us all stay at his place tonight and Monday. It will be great to see him again because he’s always so positive and so full of energy! On Monday we will be meeting with someone from the doctor’s office to work out temporary housing during our stays!