SNUC_in_NY

My late wife's journey with SinoNasal Undifferentiated Carcinoma (SNUC), and my subsequent journey as a grieving widower finding my way back to life.

Friday, January 12, 2007

Hospice services

Everyone we've worked with so far from Hospice has been helpful, supportive and just generally wonderful. The way they run the organization is pretty amazing. Basically they offer families a full range of experienced personnel (home health aides, social workers, chaplains and nurses) and a full range of equipment (hospital beds for home, IV pumps, etc.).

The key word in the description is that they "offer" all these things. Their approach is that they are here to serve us. They're not here to tell Robin what she should do, what she will need and when she should get it - rather they are here to follow her lead. It's as if they have anointed her "General" and they are awaiting her orders. I can't imagine a better strategy to helping serve a patient and family who have felt that things were sometimes out of their control (as if life was in our control to begin with!). :)

Also, the organization continues to work directly with Robin's oncologist! It had been worrisome to imagine that we were going to have to switch to a different doctor - so it was a great relief to learn that we will have continuity with respect to the medical staff.

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