Sleeper

Robin sleeps more than anything else these days. On Monday and on Tuesday she went for a walk around the block (5 minutes of exercise!). Wednesday she had an appointment with a GI doctor to have her PEG tube looked at (it's been feeling a little sore), and she went on a trip to the grocery store - that was an entire day's exercise. She claimed to be up for raking leaves, but the leaves got raked while she slept on the couch!

Her pain level seems to decrease every week. Two weeks ago she was commonly reporting pain levels of "6" and "7" out of 10, now she reports "3". She'll be resting at home through Thanksgiving and then we'll be back in New York City the following week for testing and meeting with the surgeons.

Robin now speaks a few times during the day. She usually saves it up for the nicest words like saying "I love you" with a smile!