Thursday-Friday updates

Friday p.m.

Today Robin submitted a sample to the lab so they can try to detect why her stomach has been upset. We have been trying to setup an appointment for her to see a local gastroenterologist to check her stomach, and also to try to schedule the insertion of a “PEG” tube. It appears everyone is on vacation. After 4 hours we managed to get her a local appointment at the Gastroenterology office.

Fifteen minutes later we get a call from BI that the Oncologist will come in from vacation and can see Robin Monday at 11am. The scheduler confirms that the oncologist will probably evaluate her and then will follow-up with a recommendation. Oh well, guess we need to cancel the local appointment for Monday and get out of town.

Robin’s tooth is still bothering her. Our family dentist is the greatest doctor in the world. He says he will take out the tooth anytime that is convenient for us - day or night.

It seems like a month since the original diagnosis and yet it's only been seven days!


Thursday p.m. update

We arrived home from the Beth Israel trip at 1:30 Thursday morning, and got to sleep around 2am. I was up again at 6am to write letters to update the local Head and Neck surgeon and R’s primary care provider.

Robin also had to be at the local Medical Center in the morning for the PET scan, which appears to have gone well. We fedexed the PET scan output to BI for their review.

We followed up with Beth Israel and made appointments with the Oncologist and the Chief of Radiation Therapy. The oncologist is on vacation for two weeks and the Radiation Oncologist is busy. They both gave us appointments on the 28th – about two weeks from now!